mycotoxins cleaning plan

I plan on going home friday or Saturday and I have already bought shockwave and Concrobium cleaners and now I am not sure if I want to use those, I also have looked into ozone machines ..AND honestly I am not sure I want to use those, my gut is saying use baking soda and lemon with some tea tree oil and wipe down all the walls.

 Urggg there are so many suggestions on what to do what not to do and a person never knows what is going ot be right for them .. with our breathing sinus issues I just worry that maybe less is more in the way of cleaning since our systems have already been so degraded from living with mold for so long I worry anything we do may have a adverse affect ...

 Went out to the house yesterday and it smells weird in there I hope its just  the big sheets of plastic we still have hanging everywhere and when those are gone the smell will go with it .. 

 Andrew and I went to home depot and bought some paint for his bathroom and some mildew mold resistant primer and of course I am worried about using that too ..Good God I just worry over everything ..I just want us to continue to improve..

 I am so very happy that we are going home the beginning of spring and summer I will have months to air out the house and clean with all the windows open and it will be hot and I plan on letting the house cook all summer and just spend more time in the swimming pool , we will see how that plan works when its 110 degrees outside LOL I will be buying a new window A/C just in case the heat is too much ..

 The thing is mycotoxins are hard to get rid of and I have not found and sure fire plan to make them disappear except time lots and lots of time like years and years and I am scared of them as much or more so than toxic black mold ...

Found more water damage and another leak under our floor Toxic Black Mold

The water damage in our house is much worse than we thought ...the mold remediators are there doing more testing and the whole floor from our bathroom, clear to the dining room is wet from another water leak we didn't even know was there ..I am not sure the leak has even been found yet ...I need to call Randy and get a update ..My most important advice to everyone is when your gut tells you something is wrong, very wrong, follow your instincts...I pray we will get our health back 100% ...I am so glad I left that house as if it was on fire... it was a very hard thing for me to do, just up and tell Randy we were leaving and I would not come back till we found the problem ...I was tired of seeing my kids and me sick all the time....... something was wrong and turns out I was right ...Now I need to look back on my blog and see if my illness started when the water heater leaked and we had it fixed... I know it was around that time ...and that been since 2008 or 2009 ...

dry heave vomit episode again..

** EDIT Feb 2016 We found Black mold in our home Stachey and Aspugillus and some others I believe this is the cause of  illness in my family so am updating my labels to include Toxic Black mold *****woke up at 5am felt fine went back to sleep till 8:30am then and had sharp pains behind my belly button took a zofran and within 5 minutes I had the tingly spit building in the back of my throat..ended up in the bathroom dryheaving with the most awful sound ( something like a woman giving birth)  lasted long enough for Rylan who was in the kitchen to run and tell Andrew to call 911 by this time it had eased up so I told them to hold off on calling 911 and I laid on the couch exhausted for about a half  hour... rylan was so sweet brought me a puke bag..I also  really needed a diaper cause no vomit ever actually comes out but urine does.  there is so much pressure you just can't imagine...I do use the puke bags for spit  It builds up in my mouth when this happens...what brings this on I have no idea.... its always completely out of the blue and sudden,when it happens.
     After that it was a nice day out so I went and weeded a flower bed and dug some of my bulbs that had already bloomed they are very pretty little flowers and I want them closer to the house where I can see them when they bloom, right now they were out in one of my what I call nursery beds....if any of the ones in the pots bloom.again I will post a pic or if not I will.see if I can find pics that I took of them last year or the year before...

Not a good Month

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

             Jesus I am so tired of being sick..Rylans 2nd day of school he spent vomiting.. then a few days later I spent 2 nights in the hospitial about.got Rylans vomit bug and I cannot vomit due to my surgery for my acid reflux ..had to be taken by ambulance that was not fun the guy couldn't understand while I kept dry heaving and told me to stop doing it ughh I still need to call and compain about that well I spent from 4 in th afternoon till 4 in the morning dry heaving it was awful I felt as if I was going to die before the ambulance got here I took 3 zofran randy raced off to the pharmacy and got me a scrip my NP called for phenagren suppositorierys and I put two of those in and then had randy call the ambulance they gave me I don't even know how much zofran reglan and adivan they gave me I just know I spent the night yelling and sure something in me had burst,split or disinagrated ...so then after I got out Rylan got a cold and then Randy finally after 3 weeks they both went to the docs today they have sinus infections hopefully they will be feeling good soon ...I ran out of my pain meds and my doc won't refill them so I am back to being in pain constantly my house is a mess I am having trouble sleeping and am not keeping my CPAP on at night my ambien looks diffrent than it used to so maybe its just not working as well I don't know what the hell is up but I am not getting better always tired always in pain worried my doc will think I am just drug searching well I guess I kind of am because I am in pain always with out the meds at least this time I am not having the awful withdrawls just feel like I am back to square one..so depressing I am on cymbalta and will be asking to be weaned off its not helping with the pain and its very expencive and starting in January I will have to pay full price which I believe is $170 a month till our deductiable is met which I woundn't mind paying for if I felt it was actually doing something but I have been on it long enough that I can tell its not or at least I will get on something cheaper for my mental health which I feel is just getting worse because my physical health is just getting worse or at least not getting any better every medicine is a wait for a few months to see if it works waiting game and I am just so sick of it ...well we shall see what happens wednesday ........

Finally, My toenail Meds..

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

I think I mentioned it before..
Something is wrong with my toenail, its ugly and has been since my stomach surgery... I picked up a fungus in the hospitial ughhh yuck
I finally remembered to tell my NP and she was able to prescribe fungus meds but it was at the sametime I had a sinus infection so she said to wait till I was done with antibiotics ...and I needed to get a liver test first to make sure my liver function is good so I went and got my blood drawn today its the first time I have felt well enought to do it .. I had told the NP at my follow up after my surgery he looked at me like I had 3 heads and said maybe I had bumped it :-/
My tooth I had the temp crown on is still very sensitive, so I am 99% sure I am going to need a root canal yeah me, NOT !! ...
Andrew had his hearing tested today and its fine ..so I guess his loud talking is just a habit and I am going to have to continue to tell him he needs to use his indoor voice..... He is a very loud talker and I was thinking maybe its because he couldn't hear..

Hyperextended lungs..

** EDIT Feb 2016 We found Black mold in our home Stachey and Aspugillus and some others I believe this is the cause of  illness in my family so am updating my labels to include Toxic Black mold please check out my blog here to follow as our story continues http://livingcreekside2012andbeyond.blogspot.com/ *****

               Rylan has been having some breathing problems for the past month ..I took him to the docs about a month ago i thought he had swimmers ear from snorkeling int he bathtub he kept doing a wierd yawn thing... doc said his ears looked fine but his nasal passage was a swallowen and he probably had a virus and it could take a couple of months to clear up and thats probably what the problem was So I made a appointment for his 5 year old bday well child check up and she would see how he was doing then...The next day he woke with a fever so I figured ok it is a virus and he was sick so he was sick about a week with green boogies and cough then styarted to get better but then got sick with a cough and he was still doing the wierd yawn thing some days it was really aweful and Randy was very worried and I was too he honestly looks like his breathing problem was like what I have been going through so I took him back to the docs on last tuesday or was it monday well one of those days ..I told his ped how concerned Randy and I were about his breathing still andf how he had got sick got better and then got sick and his breathing was just getting worse ...she had him get a xray to rule out pnemonia and put him on a rescue inhailer...the results of the x-ray were no pnemnomania but his lungs are hyperextended so she is pretty sure he has asthma the resuce inhailer was not helping much so he is now on a steroid inhailer as well she said it may take a couple of weeks to start working and to call if he gets worse so thats whats up ...we are tearing out all our carpeting and getting rid of our clothlike furniture and getting something that is a little more suedelike Randy and I both had shiney type material but if we have to do that and get covers to wash once a week then thats what we will do..
We are also going ot be making a call to have someone comeout and get the dead roadent out of out heater vent ughh and I read up on asthma and it says to use raideant heat I think thats like our Mr heater buddy I am thinking about maybe going with wall heaters that run along the floorboards as the site said a furnace like we have now is not the best to use because it blows the dust around the room. Since we already live on a dirt road we really have to try some extra changes that those who do not live on a paved road may not need to do...If these changes do not work we will sell our propertie and move we love our property so are really hoping these chnages will help ..there is obviously a problem since both Rylan and I are now sick in this way.. I am just so thankful that Rylan has an answer and I didn't have to try and convince the doc that there is a problem, like I have had to do on my self........ I can tell by looking at him that what ever is wrong with me is also wrong with him at least as far as our breathing goes...
People who don't live my life with my children with my and there health issues have no clue what things are like here and if I was to leave any advise for my grandchildren and great grandchildren it would be to listen to your own head and your own heart ..when it comes to there care and well being you can't told by others what you should do follow your heart stand your ground... a word of advise from my own mother is if someone dosen't make you feel good about your self then distance yourself from them and surround yourself with those who do make you feel good about yourself !!!

Sick of being sick

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

Well I am healing very well from my surgery even ate Chinese food tonight OMG it was soo good .. My latest problem well not really my latest since its been hurting for going on 2 years is my shoulder it is now to the unbearable point  I am on strong pain pills and taking 1 and a half pills 4 times a day and I am only supposed to be taking 1 pill 3 times a day ...
            This really sucks because I still have the pain it just dulls it a little I see the ortho surgeon Monday and I am so hoping he will just get me in and get this bone overgrowth taken care of  then to get my stupid tooth fixed , then my tennis elbow that been hurting for almost a year now and then hopfully I can get a answer for my back but my most pressing issue is my shoulder ..
                        I want my life back I am tired of being almost a invalid... I have a 4 year old that needs to go out and have fun not take care of his sick mom all the time and just go to the doctors every outing ...Its a good thing I am on antidepressants because I would be pretty depressed if I wasn't ...Things will get better...I just have to stay confident of that, I am am now knowing the problems, it just takes time to get them fixed ...

How many pokes...

 ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

How many pokes did it take to get a IV in me today 9 yes NINE ...I told them I was hard to get a iv in ...they said I could say stop if wanted and come back another day, But I wanted my test done ..Yesterday I went for the first part of a nuclear treadmill stress test I only had to have the dye injected then pictures of my heart taken ..Today I had to have a IV so the could inset the dye while I was walking on the treadmill ...Mindi stayed home from school to watch the boys for me and I didn't want to have her or Randy miss more school or work because of me ... My Mom is taking care of my Grandmother who is not doing very well she fainted in wal-mart today after a horrible stomach pain and is now it the hospital, her kidneys have just about shut down from being dehydrated ....Tomorrow i will go back in to have my barrettes burned off again ...Today when they were taking pictures of my heart it had a couple of racing episodes I don't know if that means anything or not the picture guy just asked me if I felt them...... I actually only felt it once ..so now I just wait to see what the cardiologist has to say ..
My IV bruises both of my wrists look pretty much the same so I only posed one

Off to the allergists today

 ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

I wonder what he will find ...I can't think of any one thing that sets me off, so we will see :-)

But I would be Calling everyday ..

So I broke down and called my gastro doc explained my problem and was told I need to call right away about things ...
Good God, if I called right away about things I would be on the phone with someone every day a few times a day ..
the only reason my blogging has gone downhill is because all I ever do is complain about how I feel everyday ...
I know she means well but its so hard.. Last time when I was regurgitation and vomiting every time I ate, she told me to only eat soft food, then I find out my esophagus was almost completely closed off.......at that time I was calling once a week..... this time I have called in a matter of 2 days because first I wanted to make sure its not just a bug or something...
Don't get me wrong she is very nice.. I just get frustrated ** mostly with myself and my own body**....my breathing was pretty good yesterday, now it feels worse again....
I am gonna go pop a klonopin and try and relax... she is having me call my regular doc and see if they can call in a script for some diflucan so while I was on the phone with them I asked if they could go ahead and refer me to a cardiologist, that's what I went in for the last time about a month ago and for whatever reason I can't remember the referal wasn't made...
so anyways I am back to blogging and I guess it will be mostly about my health because that is pretty much what consumes my every waking thoughts these days !!!!!!!!!

Jesus,Joseph and Mary

 ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

Why, why, why ........
Can I not just get better and feel better? ...My stomach and esophagus have been sore and burning since yesterday..... I was telling Randy about it tonight and he suggested maybe I have thrush again ..
I think he may be right, it is that kind of feeling, but its not in my mouth where a doc could see it and I would have to get another endoscopy to see it and get it diagnosed "I'm pretty sure" ...I just don't know what to do, seems like all I do anymore is complain about something being wrong with me rrrrrr tired of it, really am !!!!!!!!!!!

Finally ......some answers and some peace !!!

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

I feel peace for the first time this morning than I have felt in a long time ...I feel like things are coming together for my health and I am feeling so hopeful that I am going to feel good, really good again soon.... its been such a long time coming...I know seems like all I have done the past year on my blog is complain but it has really has been hard for me...
Yesterday I was diagnosed with mild Lupus and started on Plaqanil..
so now I know I have esophageal strictures,
barretts esophagus,severe gerd,
sleep apnea,
anxiety (isn't that a shocker LOL)
and more that likely fybromyalgia...
my new crown on the tooth that had gave me so much trouble feels perfect now ...
I am on prednisone for 5 more days (had to take it so I could do Disneyland for Rylans Birthday )
Its going to take about 3-6 weeks for the plaqanil to work for the lupus, if it is going to work for me...
my CPAP pressure has been dropped back to 14cm which is still high but a good sign...
my breathing even before I started this round of prednisone seems to have improved quite alot... I am now blowing 450 and even some 500 on my PFM this up from 330s ..my sleep apneas have gone from 88 an hour down to 1 an hour..I am on ambien because I can't sleep with out it yet.. I am also on klonipin to help ease my anxiety..... they tried xanax but that was way to strong for me...
So this morning I am feeling peace and it feels good and I haven't even taken a klonipin yet today, so its not that LOL

I am not leaving the house ...

***And it was our home making us sick*** ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

for 2 whole days if I can help it ...I've had too much running around lately need to stay home and get things done house still a mess and I don't think I will EVER be caught up on the laundry LOL... My Dad is doing excellent and I am so happy about that ... My family needs to stay healthy for a while I am tired of seeing the insides of Doctors offices and hospitals...... My breathing is doing much better on my $288 a month Advar prescription LOL I am hopeful that I will be able to wean off of it in a few months... lets see what else is going on we FINALLY have our motor home back.. Not real thrilled with the service we had but its seems like bad service and or bad customer service is the norm these days..so its not a big shocker to me...I just hope that the important part was done right(the roof) we paid about $150 to work on steps that work the same now as when we dropped it off and we were charged $269.00 total more that we were quoted.... it may of been a misunderstanding so we aren't throwing a big fit..he said he was going to look at the things neither one of which was fixed just "looked" at!!!
we have a new TV that we paid shipping for and Randy had to take time off from work and make two trips of 40 miles each way to pick it up...see I told you service sucks these days ..we know two places we won't be doing business with any more...

Memories

 ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

"If I had a single flower for every time I think about you, I could walk forever in my garden". In Loving Memory Of Tegan and Taylor ~~ February 4,2005~~
Back on that day I was laying in a hospital bed sick at my stomach and today here I am on a new antibiotic sick to my stomach ...
I hope I feel better after a while I would like to go get some balloons to take up to the cemetery and take a picture of Rylan ..I tried to explain to him who his sisters are last night but he doesn't really get it yet ... Its hard for me to fathom never knowing Rylan.. If Tegan and Taylor or Wyatt had lived Rylan would never of been born ...so while I miss them so much and think of them everyday ...through them I now now have the most perfect little boy in the world. Its a very odd feeling to go through because I know for sure Rylan would not be here if they had lived...

On another note I will be blogging a lot for the next 3 to 5 weeks ..I went to the pulmoligist yesterday and he thinks I have a bronchitis that has not cleared up with the other antibiotics so he put me on a stronger one (and cheaper too LOL) and also prednizone for a burst for the next 2 weeks and stronger spinhaler of advair ..oh and a peak flow meter to measure my breaths twice a day .
I felt like such a doofus at my appointment trying to explain all that I have tried and been through since last July...... OMG you guys its been a nightmare and trying to explain all the ups and down was starting to confuse me as I was explaining it...
Crazy~ness I tell ya plain crazy~ness ..So I am going to blog everything about how I feel ..So now with my plan and all them drugs, I am going start walking daily and try to loose some of the weight I have put on and see if that helps too...

So at my pulmonary function test they gave me albuteral in a neubualizer form and it didn't burn my lungs and I think it made me breath a little easier I need to remember that...
I took my first antibiotic last night at dinner ( at the Mexican restaurant) we prayed before I took it that this will fix me up.. I had no nausea ... took a ambien before I went to bed slept great all night till 7am.....
Took my antibiotic and my prednizone about 7:30 am with apples and some crackers ended up with some nausea about a 4 on the scale
breathing is at about a 2 right now at 9:25 am
dry hacky cough I am unsure if I am supposed to take the advair with the lower does right now so I think I will take it ...
I start the stronger advair when I am down to 3 prednizone pills a day.....

Normal Ultrasounds all the way around

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

I am not sure if I mentioned here that Rylan had to get another u/s on his kidneys but he did since we have been home from Portland came back 100% normal whoohooo...

Mindi's U/S alos came back normal but this is not a whoohoo because now she has to get the dye test she is getting it the 21st hopefully it will give her/us some answers ....

I have really fallen off my blogging and am going to try to get better with it...I will be going in to have a sleep study done soon, because Randy says I quit breathing when I sleep and with my other breathing problems... I think I should make sure I am breathing good at night...I am also going to be seeing a pulmuoligist because my breathing is still not real great, its lots better than it was, but still not normal I will find out times for both theses things next week my doctors are making the appointments for me ....

Falling apart over here Asthma ....

 ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

After not being able to breath very good for over a week I have a inhaler but it wasn't workingI went to the doctors on Tuesday turns out I needed a steroid inhaler along with my fast acting one...I had never had a episode of asthma last that long... I was also having a horrible pressure behind my eyes, Turns out my sinuses were really full of fluid even though I didn't have a stuffy nose...so I have sudefed to take for that...
I am breathing better but still not all the way better ..When I was at the doctors she had me breath into a breath thingy I should of blown out a 600 but was only blowing a 300 so I was only getting in half the air..my o2 level was 98% so that wasn't to bad... Now I feel like I am getting air in about 75% of my lungs the steroid inhaler said it could take up to a week to get the full benefit...It will be nice to be able to breath again...
I go back to the doctors on Thursday for a pulmonary function test....