mycotoxins cleaning plan

I plan on going home friday or Saturday and I have already bought shockwave and Concrobium cleaners and now I am not sure if I want to use those, I also have looked into ozone machines ..AND honestly I am not sure I want to use those, my gut is saying use baking soda and lemon with some tea tree oil and wipe down all the walls.

 Urggg there are so many suggestions on what to do what not to do and a person never knows what is going ot be right for them .. with our breathing sinus issues I just worry that maybe less is more in the way of cleaning since our systems have already been so degraded from living with mold for so long I worry anything we do may have a adverse affect ...

 Went out to the house yesterday and it smells weird in there I hope its just  the big sheets of plastic we still have hanging everywhere and when those are gone the smell will go with it .. 

 Andrew and I went to home depot and bought some paint for his bathroom and some mildew mold resistant primer and of course I am worried about using that too ..Good God I just worry over everything ..I just want us to continue to improve..

 I am so very happy that we are going home the beginning of spring and summer I will have months to air out the house and clean with all the windows open and it will be hot and I plan on letting the house cook all summer and just spend more time in the swimming pool , we will see how that plan works when its 110 degrees outside LOL I will be buying a new window A/C just in case the heat is too much ..

 The thing is mycotoxins are hard to get rid of and I have not found and sure fire plan to make them disappear except time lots and lots of time like years and years and I am scared of them as much or more so than toxic black mold ...

Coming down with something

It feels like a cold coming on now UGH I guess the timing is pretty good LOL
Here is a short slideshow of our coast trip

Found more water damage and another leak under our floor Toxic Black Mold

The water damage in our house is much worse than we thought ...the mold remediators are there doing more testing and the whole floor from our bathroom, clear to the dining room is wet from another water leak we didn't even know was there ..I am not sure the leak has even been found yet ...I need to call Randy and get a update ..My most important advice to everyone is when your gut tells you something is wrong, very wrong, follow your instincts...I pray we will get our health back 100% ...I am so glad I left that house as if it was on fire... it was a very hard thing for me to do, just up and tell Randy we were leaving and I would not come back till we found the problem ...I was tired of seeing my kids and me sick all the time....... something was wrong and turns out I was right ...Now I need to look back on my blog and see if my illness started when the water heater leaked and we had it fixed... I know it was around that time ...and that been since 2008 or 2009 ...

Overwhelmed

I have so much responsibilities...and I get overwhelmed ..I have always taken care of my family.. Randy and I have made sure we made good money decisions..We help people when able, and also try to help others make good choices ..sometimes, many times I have asked Randy if I can just run away, if we can run away ...I don't ask for much from anyone, honestly I really don't ask for anything from anyone for myself..ok I do have Mindi come watch Rylan if I have to go to a appointment and I have had to ask my mom to come watch him a few times.. I had been very sick the past few years...maybe you hadn't noticed LOL "for the past 3 years" but basically if I cant do it on my own or with Randy's help then we do without..I don't see very much of this in others.. I have Randy to lean on he is my greatest support and has been there for me and helped me with our decisions.. he works hard everyday and complains very little.. I don't always have answers for everyone..I feel good about things I have done and overcome in my life.. I am proud of myself and don't feel the need or care if others are proud of me.. I KNOW what I have overcome and what Randy has overcome to be the people we are, and we are pretty damn awesome... I keep plugging along..I have a new chapter in my life and I am just not sure how to go about doing things ..maybe I will write more about it maybe I wont..Just feeling overwhelmed and lost right now and would like to close the curtains, lock the doors, turn off my phone and focus on me and my house but that is not going to happen !!!

Puffy Face and headache

I think I am getting this allergy thing figured out ..I am not supposed to be eating glutin or dairy so what did I eat yesterday frozen pizza hmmm its odd because I can eat a cheese buger and feel fine the next day so I am not exactly sure what gave me these symptoms this morning ..gonna start paying more attention to what I am eating ..I did have my allergy test so I know what I am not supposed to eat but I do cheat and sometimes I get away with it ...last week on Easter I ate foods that I wasn't supposed to and ended up puffy and headachy then too...this changing how you eat is very hard to do and not something that I have been able to do in a quick fashion.

Invalid...

yesterday I moved one little cypress tree that involved digging it up and then digging a new hole...I also covered my future stawberry beds with black plastic then carried logs over to hold the plastic down..Today I feel as if I have been hit by a truck ugh..still managed to clean and dust a bookshelve in the bedroom and made turkey soup for dinner...it was a hard day....hope I feel lots better tomarrow! !

dry heave vomit episode again..

** EDIT Feb 2016 We found Black mold in our home Stachey and Aspugillus and some others I believe this is the cause of  illness in my family so am updating my labels to include Toxic Black mold *****woke up at 5am felt fine went back to sleep till 8:30am then and had sharp pains behind my belly button took a zofran and within 5 minutes I had the tingly spit building in the back of my throat..ended up in the bathroom dryheaving with the most awful sound ( something like a woman giving birth)  lasted long enough for Rylan who was in the kitchen to run and tell Andrew to call 911 by this time it had eased up so I told them to hold off on calling 911 and I laid on the couch exhausted for about a half  hour... rylan was so sweet brought me a puke bag..I also  really needed a diaper cause no vomit ever actually comes out but urine does.  there is so much pressure you just can't imagine...I do use the puke bags for spit  It builds up in my mouth when this happens...what brings this on I have no idea.... its always completely out of the blue and sudden,when it happens.
     After that it was a nice day out so I went and weeded a flower bed and dug some of my bulbs that had already bloomed they are very pretty little flowers and I want them closer to the house where I can see them when they bloom, right now they were out in one of my what I call nursery beds....if any of the ones in the pots bloom.again I will post a pic or if not I will.see if I can find pics that I took of them last year or the year before...

Adrenal Saliva Test Results and More

Received my results from my saliva testing at the natural-path doc ...My cortisol levels as you can see begin in the morning not even in the normal shaded part of the graph, No wonder I feel so lazy, tired and uninterested in anything..... other than things I have to do in order to get by everyday and I totally suck at those things .... I am completely and udderly exhausted all day/ all night....... along with the awful insomnia I suffer its a wonder to me I am even still kicking I honestly feel that bad !!!

From my blood test my vitamin D is critically low 24 for a person with autoimmune issues it should be at the very least 60 ..I am also very low on sodium, so I am to use extra salt ~ good salt ~ not plain old table salt....... we have been using the Mediterranean salt from Costco.. One of my friends the one who kept on encouraging me to go see the natural-path doc told me of a favorite salt she likes of course I can't remember what she called it LOL Who would of imagined there are different salts like that, not me that's for sure ..

My progesterone in the low end of normal at 24 ...22 is the bottom of the chart

My ESR has come down from 22 to 16 but my doc said ideal for me would be under 3 this is the test that tells how much you hurt~ I am not really sure how it does that ...

I have high normal white blood count as I usually do....... she is sure it because my body is fighting something, maybe the gluten that I also learned I am allergic to.... I misplaced my paper that has my gluten numbers on it, I will add the numbers when I find the paper and get a chance to ..My doc said I should not even let gluten/wheat touch anything I will be eating~ it is poison to me ..Her theory is that when foods are genetically modified some of our bodies know it and fight off the modifications as if its a invader in our bodies..

I still don't have the results of all my thyroid tests back yet and I see her again in 2 weeks to see if the herbs and vitamins are helping me feel better.... The one she may change if I am not feeling any better is the progenalon and change me to hydrocortazone ...I asked her if this could be the reason I feel so good and normal on prednisone and she said yes definitely, because that is a steroid and cortisol is a steroid our bodies make my body has just stopped making enough of it , due to stress or what ever my adrenals did all they could do then they just pretty much gave up its called adrenal fatigue... here is a link to a page I found yesterday that explains what it feels like pretty cl Adrenal Fatigue

Oh and I am on COD LIVER OIL ...yuck yuck yuck I hate fish and to have to ingest the liver of a fish completely grosses me out but if it makes me feel better I do it !!! I am also on high doses of vitamin D and some other herb type things nothing as gross as the cod liver oil though !!!!!!!

Not a good Month

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

             Jesus I am so tired of being sick..Rylans 2nd day of school he spent vomiting.. then a few days later I spent 2 nights in the hospitial about.got Rylans vomit bug and I cannot vomit due to my surgery for my acid reflux ..had to be taken by ambulance that was not fun the guy couldn't understand while I kept dry heaving and told me to stop doing it ughh I still need to call and compain about that well I spent from 4 in th afternoon till 4 in the morning dry heaving it was awful I felt as if I was going to die before the ambulance got here I took 3 zofran randy raced off to the pharmacy and got me a scrip my NP called for phenagren suppositorierys and I put two of those in and then had randy call the ambulance they gave me I don't even know how much zofran reglan and adivan they gave me I just know I spent the night yelling and sure something in me had burst,split or disinagrated ...so then after I got out Rylan got a cold and then Randy finally after 3 weeks they both went to the docs today they have sinus infections hopefully they will be feeling good soon ...I ran out of my pain meds and my doc won't refill them so I am back to being in pain constantly my house is a mess I am having trouble sleeping and am not keeping my CPAP on at night my ambien looks diffrent than it used to so maybe its just not working as well I don't know what the hell is up but I am not getting better always tired always in pain worried my doc will think I am just drug searching well I guess I kind of am because I am in pain always with out the meds at least this time I am not having the awful withdrawls just feel like I am back to square one..so depressing I am on cymbalta and will be asking to be weaned off its not helping with the pain and its very expencive and starting in January I will have to pay full price which I believe is $170 a month till our deductiable is met which I woundn't mind paying for if I felt it was actually doing something but I have been on it long enough that I can tell its not or at least I will get on something cheaper for my mental health which I feel is just getting worse because my physical health is just getting worse or at least not getting any better every medicine is a wait for a few months to see if it works waiting game and I am just so sick of it ...well we shall see what happens wednesday ........

Finally, My toenail Meds..

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

I think I mentioned it before..
Something is wrong with my toenail, its ugly and has been since my stomach surgery... I picked up a fungus in the hospitial ughhh yuck
I finally remembered to tell my NP and she was able to prescribe fungus meds but it was at the sametime I had a sinus infection so she said to wait till I was done with antibiotics ...and I needed to get a liver test first to make sure my liver function is good so I went and got my blood drawn today its the first time I have felt well enought to do it .. I had told the NP at my follow up after my surgery he looked at me like I had 3 heads and said maybe I had bumped it :-/
My tooth I had the temp crown on is still very sensitive, so I am 99% sure I am going to need a root canal yeah me, NOT !! ...
Andrew had his hearing tested today and its fine ..so I guess his loud talking is just a habit and I am going to have to continue to tell him he needs to use his indoor voice..... He is a very loud talker and I was thinking maybe its because he couldn't hear..

sinus pinus

so Andrew and I have sinus infections and maybe Rylan does too he is still having bad green boogers so I took him in his doc was gone so we seen the blood draw doc from when Rylan was a baby ..he wants to try Rylan on a round of antibiotics. That sounds good to me he has been sick for over a month with this breathing thing ...so he is on amoxacillion I am augmaenton and Andrew is on Zpak .
Poor Andrew was so miserable last night with being stuffed up I am praying that is clears up today I have been giving him decongestentes but they are just not working very well I think maybe him I may go into town after Randy gets home and see about nasel spray or something..
Be nice if he was feeling somewhat better before then so we wouldn't need to go !!!

Hyperextended lungs..

** EDIT Feb 2016 We found Black mold in our home Stachey and Aspugillus and some others I believe this is the cause of  illness in my family so am updating my labels to include Toxic Black mold please check out my blog here to follow as our story continues http://livingcreekside2012andbeyond.blogspot.com/ *****

               Rylan has been having some breathing problems for the past month ..I took him to the docs about a month ago i thought he had swimmers ear from snorkeling int he bathtub he kept doing a wierd yawn thing... doc said his ears looked fine but his nasal passage was a swallowen and he probably had a virus and it could take a couple of months to clear up and thats probably what the problem was So I made a appointment for his 5 year old bday well child check up and she would see how he was doing then...The next day he woke with a fever so I figured ok it is a virus and he was sick so he was sick about a week with green boogies and cough then styarted to get better but then got sick with a cough and he was still doing the wierd yawn thing some days it was really aweful and Randy was very worried and I was too he honestly looks like his breathing problem was like what I have been going through so I took him back to the docs on last tuesday or was it monday well one of those days ..I told his ped how concerned Randy and I were about his breathing still andf how he had got sick got better and then got sick and his breathing was just getting worse ...she had him get a xray to rule out pnemonia and put him on a rescue inhailer...the results of the x-ray were no pnemnomania but his lungs are hyperextended so she is pretty sure he has asthma the resuce inhailer was not helping much so he is now on a steroid inhailer as well she said it may take a couple of weeks to start working and to call if he gets worse so thats whats up ...we are tearing out all our carpeting and getting rid of our clothlike furniture and getting something that is a little more suedelike Randy and I both had shiney type material but if we have to do that and get covers to wash once a week then thats what we will do..
We are also going ot be making a call to have someone comeout and get the dead roadent out of out heater vent ughh and I read up on asthma and it says to use raideant heat I think thats like our Mr heater buddy I am thinking about maybe going with wall heaters that run along the floorboards as the site said a furnace like we have now is not the best to use because it blows the dust around the room. Since we already live on a dirt road we really have to try some extra changes that those who do not live on a paved road may not need to do...If these changes do not work we will sell our propertie and move we love our property so are really hoping these chnages will help ..there is obviously a problem since both Rylan and I are now sick in this way.. I am just so thankful that Rylan has an answer and I didn't have to try and convince the doc that there is a problem, like I have had to do on my self........ I can tell by looking at him that what ever is wrong with me is also wrong with him at least as far as our breathing goes...
People who don't live my life with my children with my and there health issues have no clue what things are like here and if I was to leave any advise for my grandchildren and great grandchildren it would be to listen to your own head and your own heart ..when it comes to there care and well being you can't told by others what you should do follow your heart stand your ground... a word of advise from my own mother is if someone dosen't make you feel good about your self then distance yourself from them and surround yourself with those who do make you feel good about yourself !!!

Sick of being sick

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

Well I am healing very well from my surgery even ate Chinese food tonight OMG it was soo good .. My latest problem well not really my latest since its been hurting for going on 2 years is my shoulder it is now to the unbearable point  I am on strong pain pills and taking 1 and a half pills 4 times a day and I am only supposed to be taking 1 pill 3 times a day ...
            This really sucks because I still have the pain it just dulls it a little I see the ortho surgeon Monday and I am so hoping he will just get me in and get this bone overgrowth taken care of  then to get my stupid tooth fixed , then my tennis elbow that been hurting for almost a year now and then hopfully I can get a answer for my back but my most pressing issue is my shoulder ..
                        I want my life back I am tired of being almost a invalid... I have a 4 year old that needs to go out and have fun not take care of his sick mom all the time and just go to the doctors every outing ...Its a good thing I am on antidepressants because I would be pretty depressed if I wasn't ...Things will get better...I just have to stay confident of that, I am am now knowing the problems, it just takes time to get them fixed ...

How many pokes...

 ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

How many pokes did it take to get a IV in me today 9 yes NINE ...I told them I was hard to get a iv in ...they said I could say stop if wanted and come back another day, But I wanted my test done ..Yesterday I went for the first part of a nuclear treadmill stress test I only had to have the dye injected then pictures of my heart taken ..Today I had to have a IV so the could inset the dye while I was walking on the treadmill ...Mindi stayed home from school to watch the boys for me and I didn't want to have her or Randy miss more school or work because of me ... My Mom is taking care of my Grandmother who is not doing very well she fainted in wal-mart today after a horrible stomach pain and is now it the hospital, her kidneys have just about shut down from being dehydrated ....Tomorrow i will go back in to have my barrettes burned off again ...Today when they were taking pictures of my heart it had a couple of racing episodes I don't know if that means anything or not the picture guy just asked me if I felt them...... I actually only felt it once ..so now I just wait to see what the cardiologist has to say ..
My IV bruises both of my wrists look pretty much the same so I only posed one

Off to the allergists today

 ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

I wonder what he will find ...I can't think of any one thing that sets me off, so we will see :-)

Sick

***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

So for the first time since I have started my breathing problems a year and a half ago, I am sick with something lung related....... ughh I am thinking bronchitis because its burning when I breath in ...I will wait to see how I feel tomorrow before I make a decision about going to the doctors ..who knows maybe it will jump start my lungs into acting like they are supposed to again...

I love My Gastro Doc...

He called me twice today :-) the first time I was still sleeping because I sleep till oh about noon these days thanks to a active spoiled little boy who keeps me up till midnight or later LOL I have always been the lets get to bed soon as its dark outside kind of person and that is not me anymore LOL...
                      So anyways I called the office this afternoon just thinking I would let Deb his nurse know that I was feeling better, and Dr H must of left a message at the desk that if I called, he himself would call me back and sure enough at 5 pm he called to see how I was feeling and if the burning was gone and that yes it definitely could of been yeast overgrowth in there, the steroids shots I had in my esophagus make me much more susceptible to that happening, he wanted to know how my swallowing was doing as well ..I let him know for the most part its ok but once in a while I have to grunt and struggle just a little to get stuff down he said I may have a bit of trouble swallowing for the rest of my life. I assured him that this is nothing compared to what I had gone through and that would be ok if this was life long ....so anyways he was really understanding and concerned and that made me feel really good....

But I would be Calling everyday ..

So I broke down and called my gastro doc explained my problem and was told I need to call right away about things ...
Good God, if I called right away about things I would be on the phone with someone every day a few times a day ..
the only reason my blogging has gone downhill is because all I ever do is complain about how I feel everyday ...
I know she means well but its so hard.. Last time when I was regurgitation and vomiting every time I ate, she told me to only eat soft food, then I find out my esophagus was almost completely closed off.......at that time I was calling once a week..... this time I have called in a matter of 2 days because first I wanted to make sure its not just a bug or something...
Don't get me wrong she is very nice.. I just get frustrated ** mostly with myself and my own body**....my breathing was pretty good yesterday, now it feels worse again....
I am gonna go pop a klonopin and try and relax... she is having me call my regular doc and see if they can call in a script for some diflucan so while I was on the phone with them I asked if they could go ahead and refer me to a cardiologist, that's what I went in for the last time about a month ago and for whatever reason I can't remember the referal wasn't made...
so anyways I am back to blogging and I guess it will be mostly about my health because that is pretty much what consumes my every waking thoughts these days !!!!!!!!!

Jesus,Joseph and Mary

 ***EDIT  I believe we had been suffering from Toxic black mold  I found out in Feb 2016 ****

Why, why, why ........
Can I not just get better and feel better? ...My stomach and esophagus have been sore and burning since yesterday..... I was telling Randy about it tonight and he suggested maybe I have thrush again ..
I think he may be right, it is that kind of feeling, but its not in my mouth where a doc could see it and I would have to get another endoscopy to see it and get it diagnosed "I'm pretty sure" ...I just don't know what to do, seems like all I do anymore is complain about something being wrong with me rrrrrr tired of it, really am !!!!!!!!!!!

"Milk of amnesia"

The hospital called today to see how I was feeling and I told them about the shortness of breath and she said it could be from the Fentanyl that they also give when they knocked me out with the Propofol that would make since, since my breathing has improved some each day now ...still going to the allergist for sure ...just thought I would update :-)
I also guess its normal to be forgetful after the propofol, I just read this on wikipedia

**Due to its amnestic effects and appearance as a white liquid, propofol has been humorously dubbed "milk of amnesia" by health workers.**

So its also normal to be a loopy afterwards and forget !!!!!! Ahhh I am not crazy yeah !!! I find myself having to ask Randy about stuff after wards or he will tell me stuff then I will be like oh yeah I remember that now ..
I always wake up so happy from the propofol its wierd to think that Michael Jackson woke up that way everyday nice that he would of been happy but goodness how did he ever remember anything :-/ YIKES !!!!
By the way my breathing is still not as good as before but its not as bad as it was Friday... I am continuing to do my advair and plan to keep using it until my esophagus problem is taken care of and I am not having to go in every month and have procedures I really wanted to get my self off as it is very expensive almost $200 a month and we will have to meet our deductible again at the beginning of the year..I really just don't have a choice, I feel like I could die when I am having trouble breathing and its not a good feeling...