six years..

my baby is now 6 years old wow it sure has gone by quickly ...he is getting ready to lose his first tooth,  the big tooth is right behind it and we can see it very well :-)....
so today we went to toys r us and to the olive garden for dinner all he ate was bread sticks lol.....the weather today was cold brrr he asked me why its always like this on his birthday my answer was because it just happens to be the time of year you were born ..I am sure its confusing to him because last week was so summery warm.

My Motto for 2012

Believe .....2012 is going to be a good year! !

Butrans Patch

so the patches are ok I am still taking ibruprofin and they are really not doing much for my energy level oh well I am gettin a few more things done anyways..
I made a appointment with a naturapahic doc my insurance covers it an d I also found through a friend of mine a place that I can get my thyriod checked without a prescription you can not believe how hard it is to get a doc to write a prescription to get a few mor thyroid levels checked my God you would think I am asking them to empty their bank accounts and give me all their damn money ...
I also called to ask for the results from all the blood I had taken when I first seen my rhumey doc so hoping to get that in a few days
Also got a list of chyropractors so I will see one of them too the last experiance with one was not good so this is very scary for me but I am 100% sure I am not a nut case well at least anymore that naybody else is and I don't want to just have a label put on me and some kind of mind altering drugs then sent on my way...
How many times have I said "I KNOW THEIR IS SOMETHING WRONG AND THE DOCS ARE JUST NOT FINDING IT" I am sure its been quite often ...
so I just keep trudging down this long lonely road of feeling like shit most of the time ...
My teeth are feeling better since my new dentist did listen to me I think I am going to have to get the bad gold crown from the bad dentist fixed before the new year it has been giving me small toothaches now and then ..
Lets see what else Rylan LOVES school I hope he dosen't have many more sick days
Oh and his sleep schedule is right on track he falls asleep at 8 or 9 on school nights and gets up at 6 am on school days of course I get him dressed and he sleeps in the car till his bus comes :-) on the weekends he is up at or before 8am so YAY me good job some people had concerns but it has all worked out well...
If anyone reads this to catch up on my life and I havn't emailed you personaly its because my health is getting worse and I use the energy I have to take care of the family and get to doctor appointments ..

My mamas birthday today

Had a wonderful time at abbys pizza ..celebrating my mom my brother james and my mommys hubbys birthday..got to hold and feed baby Zane ohhh he is so sweet...funny when I fed him he was just kind of nibbling on the bottle but when his mama Latasha fed him he was very intently looking her in the eyes and sucking away like a litttle mad man lol...my nephew Billy has a hair cut he is so handsome also brought his girlfriend for us to meet a very pretty girl I can't remember her name though...of course we missed having big Billy and my Grandma there with us my mom gave me a beautiful locket with my grandmas birth year and death year I am going to add it to my chain with Wyatt,Tegan and Taylors birthstones...when we came home I was laying on the little couch and Rylan said my grandma was standing by me I asked him what she was doing and he said giving me a kiss so I said I am kissing her back,  he said are you kissing her with your spirit and I said yes I am kissing her with my spirit ...he hasn't ever said anything like that before ....

God Put me There !!

The other night was it last night or the night before...I asked Rylan if he knew how he got in my belly cause we have been talking about me being pregnant with him lately and he said with out even missing a beat "God put me there" it was so sweet..we are not big church goers or anything and I am not sure how much religion he really knows but he did know that :-)

Getting ready for school

I know lots of you are sad about your little ones going off to school. but in a way I can't wait for Rylan to go. He is so social and I just know he is going to LOVE it.... when ever we go anywhere, like parks and stuff its like Randy and I don't even exist anymore, he is off having fun and making friends ..I have felt so bad about being so sick the last few years and not being able to do all the things I planned in my mind when I was pregnant... like playdates at the park and doing lots of fun things.. so for me I am so excited that he is going to be out with friends and totally in his element.. hopefully he has a awesome kindergarden teacher... the school had to hire a new one because its only a part time position because of budget cuts and the one from last year is moving to a new school for a full time job she was really nice too..anyways just thought I would update on my feelings at this point about how I am feeling :-)

I love flooring

It ewas so nice to wake up to carpet in the living room it feels do much more like a home. We also got our plugs for our cpap machines that we can use top plug into therd cigarette lighters in the motor home this will open up slot more camping opportunities for us erd won't be having to pay 20 bucks a night I think the first place I would like to go is kellogg beach, weused to go there alot when we had our quads... now we will just hang out on the beach and play in the waves.... today rylan learned how to float on his back, lady week he learned how to swim under water ....

A lazy day

A lazy day with the flooring done, leftovers in the fridge and the laundry petty much caught up.I am taking the day to relax laying in bed doing nothing. Not sure if I posted that I ann back on my pain medication but I am the pain in my back and leg just comes back anf its so dibilatating that I just can't take it.
  I am loving our new flooring soo much its so beautiful and feels so good on my feet who knew flooring could make ypu so miserable the least stuff was awful we still have it in our bedroom and rylans bedroom randy amd I will take it out when we fix it up for Rylan when he starts sleeping in there. right now he is still sleeping with us a few nights a week, he has a toddler bed in our room but likes sleeping in bed with us if he its making the choice lol.

Day 3

I am tired !!! don't feel real bad...... don't feel real good.... actually feel like maybe a UTI coming on, ughhhh always something /...Maybe tomorrow I will wake up and feel good...I also think that once we get our flooring put in I will feel better too... sounds dumb but I am sick of this subfloor...... I can't take the echoing its just way too loud our carpet is supposed to be in by the end of the week but the laminate needs to be put down first and after it gets here we have to let it just sit in the house for 48 hours ...after the flooring is down then I am fixing up Rylans room for him he is just about grown out of his toddler bed ...I think Randy would like Rylan to sleep in our room forever LMAO its a far cry from when I first brought up the VR and he wondered where would a baby sleep "in our our room?" hahahahahahahaha funny how things change ...now if I could just get to feeling better for summer I would be so overjoyed

My baby is 5 years old

Oh my, how time flys ...We went to lunch at Si Casas and then went shopping at costco I told Rylan he could pick a toy but they didn't have any toys other than a sand bucket that he got last time we were there so we bought a book with a pen that reads the stuff to you its a britancinca book and there are actually 3 books in the package we had fun with them last night one is about dinasours another about fish and one more I can't remember LOL..we bought a giant chocolate cake and Joanie gave us some angel light candles that the flams glow for it she went with us yesterday too ...I know my Mom wanted to come too but my Grandma is not feeling good and hospice and a nurse were coming out to the house to get her signed up :-( ...
while at costco we bought all kinds of easy foods and snacks for our camping weekend and Rylans party on Sunday ...I am praying for no rain !!!
so night before last Rylan decied to sleep like a horsey sleeps ..I said ok and off to sleep I went and left him standing there ..well when Randy got up Rylan was sleeping in the middle of the bedroom and he got stepped on LOL not very hard though ..Randy picked Rylan up and put him in bed with me and later when he called at lunch Rylan didn't even know he had been stepped on ...
Last week I took Andrew to the ear docs and they sucked a huge piece of ear wax out of his left ear Andrew says his ear if feeling much better now and he can hear better.. I am going ot have his hearing rtested soon just to make sure cause he talks really loud...ok signing off for now Rylan wants to watch some natzi zombie nerf gun youtube videos ...Oh and I had my other tow blogs printed into books and they turned out beautiful I am getting this one printed up soon too ..I learned that the tinypic pictures that have been changed into others pictures do not print when the books are printed What a relief :-) Later !!!

For My Children..

I am so lucky to have my Mindi~Andrew~and Rylan you are my story !!



All of these lines across my face
Tell you the story of who I am
So many stories of where I've been
And how I got to where I am
But these stories don't mean anything
When you've got no one to tell them to
It's true...I was made for you
I climbed across the mountain tops
Swam all across the ocean blue
I crossed all the lines and I broke all the rules
But baby I broke them all for you
Because even when I was flat broke
You made me feel like a million bucks
You do
I was made for you
You see the smile that's on my mouth
It's hiding the words that don't come out
And all of my friends who think that I'm blessed
They don't know my head is a mess
No, they don't know who I really am
And they don't know what
I've been through like you do
And I was made for you...
All of these lines across my face
Tell you the story of who I am
So many stories of where I've been
And how I got to where I am
But these stories don't mean anything
When you've got no one to tell them to
It's true...I was made for you

Our carpet is going bye bye

We found a taker for our carpet Turns out my SIL/BIL need carpet for their rental yeah works good for them and for us ...Only thing is they need it by the 9th so Friday My Moms hubby and his son will be here ripping it out ..Andrew and I have been moving stuff out of the office ..its going to be his new room ...I hope this improves Rylans breathing..
Rylan and I have spend t most of the past two days outside and I think his breathing is better out there but I can't be sure I am going to pay extra close attention tomarrow its so frustraiting and worrisom I just want him breathing better now ...
I woke up with a sniffaly nose this morning ughhh not fun Andrew and Randy are sniffaly too..
Rylan has been playing with the neighbor kids and we spend every afternoon riding bikes up and down the road its a good thing I am getting better LOL ...I am going to run out of pain pills before I go back to my rhumey doc I hope I just get better and won't need t them but I have been living on ibruprofins for years so I don't think thats likely...

washing washing washing

Been doing laundry all day love my new washer it fits 5 CUs and I like washing 5 CUs at a time ..
ALSO Love the new dishwasher its so quiet compared to my last one... This one is maytag, the last one was kenmore... A total diffrence that last one never did seem to work right... we had it for 5 years..
A family friend will be coming to pick up our appliances to recycle them, the refriderator is going to the rental in town and then they will recyclye the fridge from town {{that has also never worked right from day one}}...Please let these new appliances last a long long time..
Rylans breathing seems to be better, he is still a little short of breath but not nearly as bad..our plan is to rip this carpet out as soon as we can and start installing the lamanet flooring ..Randy and I did Andrews room a few years ago and it wasn't to hard to do so by picking that flooring we will be saving alot in instalations costs... Right now its on sale for .77 sq foot we need to go see if they have a color we like, our plan is to buy as much as we will need then take our time putting it down.. we are also getting rid of this cloth funiture..of course when I bought it everyone was breathing fine I had no idea that it would be such a bad choice for a dirt road when I sit here I smell dust..please please please let these changes fix Rylan and I ! Not being able to breath is awful it takes everything out of you...This has been such a hard couple of years and to top it off one of my friends who I thought was a good friend decied to tell me how to raise my child ..I was so hurt, I cried for a day but then decieded she has her right to her opinion. But I have the right to not have someone in my life who makes me feel bad, even for one single day.....

Hyperextended lungs..

** EDIT Feb 2016 We found Black mold in our home Stachey and Aspugillus and some others I believe this is the cause of  illness in my family so am updating my labels to include Toxic Black mold please check out my blog here to follow as our story continues http://livingcreekside2012andbeyond.blogspot.com/ *****

               Rylan has been having some breathing problems for the past month ..I took him to the docs about a month ago i thought he had swimmers ear from snorkeling int he bathtub he kept doing a wierd yawn thing... doc said his ears looked fine but his nasal passage was a swallowen and he probably had a virus and it could take a couple of months to clear up and thats probably what the problem was So I made a appointment for his 5 year old bday well child check up and she would see how he was doing then...The next day he woke with a fever so I figured ok it is a virus and he was sick so he was sick about a week with green boogies and cough then styarted to get better but then got sick with a cough and he was still doing the wierd yawn thing some days it was really aweful and Randy was very worried and I was too he honestly looks like his breathing problem was like what I have been going through so I took him back to the docs on last tuesday or was it monday well one of those days ..I told his ped how concerned Randy and I were about his breathing still andf how he had got sick got better and then got sick and his breathing was just getting worse ...she had him get a xray to rule out pnemonia and put him on a rescue inhailer...the results of the x-ray were no pnemnomania but his lungs are hyperextended so she is pretty sure he has asthma the resuce inhailer was not helping much so he is now on a steroid inhailer as well she said it may take a couple of weeks to start working and to call if he gets worse so thats whats up ...we are tearing out all our carpeting and getting rid of our clothlike furniture and getting something that is a little more suedelike Randy and I both had shiney type material but if we have to do that and get covers to wash once a week then thats what we will do..
We are also going ot be making a call to have someone comeout and get the dead roadent out of out heater vent ughh and I read up on asthma and it says to use raideant heat I think thats like our Mr heater buddy I am thinking about maybe going with wall heaters that run along the floorboards as the site said a furnace like we have now is not the best to use because it blows the dust around the room. Since we already live on a dirt road we really have to try some extra changes that those who do not live on a paved road may not need to do...If these changes do not work we will sell our propertie and move we love our property so are really hoping these chnages will help ..there is obviously a problem since both Rylan and I are now sick in this way.. I am just so thankful that Rylan has an answer and I didn't have to try and convince the doc that there is a problem, like I have had to do on my self........ I can tell by looking at him that what ever is wrong with me is also wrong with him at least as far as our breathing goes...
People who don't live my life with my children with my and there health issues have no clue what things are like here and if I was to leave any advise for my grandchildren and great grandchildren it would be to listen to your own head and your own heart ..when it comes to there care and well being you can't told by others what you should do follow your heart stand your ground... a word of advise from my own mother is if someone dosen't make you feel good about your self then distance yourself from them and surround yourself with those who do make you feel good about yourself !!!

Saboteur

Randy accused me of being a saboteur of our washing machine..It stopped working today first not draining then after I got it to drain it wouldn't spin..Of course when he got home it spun fine. We did another load and that one washed fine too...
I guess it will still be a while before I get new ones I want top loaders but I have 2 friends that have them and hate them, I hate beding to get out the laundry ughh so I don't know whats going to happen ...
Rylan is sick with a cold again he didn't have many cold in his life due to me nursing him for 3 years...... Now he has been sick for at least a couple of weeks this time alone ...he is having shortness of breath...I took him to the docs for it already and his lungs are clear..... I hope he is not getting what ever has made me so short of breath... at first I thought he had a plugged ear but Randy say's he has been doing it for a quite a while,he is able to play alot harder with him than I am due to my shortness of breath so at this point I am going to watch and see for a while longer and he is well and see what his breathing is doing..

Laundry Day !!!

My facebook posts from this morning :-)

After I fell asleep last night Rylan piled up all these clothes at the foot of our bed(not sure yet from where LOL drawers closets,dirties ughhh) and went to sleep on top... he also had a make up table chair blocking Randys access to the bathroom LOL good thing I use my phone as a light when I wake up early like this !!!
I just noticed that pillow he is sleeping on is one that was on my bed last night when I fell asleep, his is the heart pillow !!
Apparently Rylan woke Randy at 2am to inform him that he put all his clothes in a pile !! Oh man I set the TV timer to off at 11 I was pretty sure we were both tired he had a very fun day with lots of new toys from big lots !! It was like christmas :-)
Well Randy just discoved his work clothes are in that pile LOL a full load of clean that came out of the dryer right before bed !!
Chele said "Oh Boy! Poor Randy. lol and you.........Just my two cents..........when Rylan gets up teach him how to fold and stack them even if they aren't perfectly done."
Me "That's a really good idea in theroy LOL I am not so sure I will be able to convice Rylan OMG I have no idea what it clean or dirty since I hav't been the one that does the laundry I can't get the clothes out of the washer or dryer other than a piece or two myself ...and at least 3 more weeks of this ...I keep telling Rylan when I am old and he has to take care of me I am paying him back LOL I don't think he gets it yet, but he will in about 40 years :-)
Chele " It will take you awhile but I'd show Rylan how to separate them. Have him help you load them in the washer. When they are clean move them to the dryer. When they are dry have Rylan put them on the bed and you guys fold them. After all that work he may think twice before doing something like that again. Tell Rylan to tv or games unless he cleans up his mess. lol
Me "
I am going to do that !! I wonder what he was thinking when he was piling it up ? I am sure he will tell me soon as he wakes up LOL its like he knows soon as my CPAP mask is on he has free rein ,if I try to stay awake and out last him then I fall asleep without my mask and feel like crap the next day and he has free rein cause I am so tired and have no energy to play ...its been a hard few years LOL
He just tAlked in his sleep And he said "I did that, I did all that laundry"
Chele "Well, he's about to learn what doing "REAL" laundry is all about. lol
Me " The rest of the story !!! After Rylan woke up he called me into the bedroom so pround of himself for helping me clean up the bedroom and putting the clothes ina pile so I could wash and them and wouldnm"t have to do it myself LOL I have e...xcuse me had alot of clean clthes on the dressers because its hard for me to open them since my surgery (oh so maybe the clothes have been on top of the dresser for a while uh but the floor was for dirty clothes only LMAO so how do you get mad and a sweet little boy just trying to help his Mama... I said but Mama can"t get the clothes out of the washer or dryer he offered up the service of Andrew I said "what about you he said "I am too little"

Swimmer Boy ...

Photo Sharing - Video Sharing - Photo Printing

Will I ever blog again ??

I sure hope so ...because that would mean that things are getting back to normal ...Right now my Dad is still waiting to hear from Stanford to see if they can do the procedure on his leaky heart valve ...I am recovering from radio frequency ablation in my esophagus which it was more painful than I had imagined..Rylan is learning to swim in his little pool with his snorkel and mask...he is doing homeschool PE at the YMCA right now and I am signing him up for swim lessons soon ...

Disneyland 2010 for Rylan Birthday

We had a most wonderful time …we caught our plane at about 7 am on May 24th arrived in LA about 9 am and were walking in the gates to Disneyland by noon awe…. No 16 hours in a car……. just a hop skip and a jump away……. it was awesome !!!!!!! I hired a shuttle van to take us to our motel which we loved the Howard Johnston it was just across the street from Disneyland ..
Rylans first Ride was the Jungle Cruise and he loved it second haunted mansion not a good a choice and his third was the pirates of the carabien that wasn’t a good choice either lol he did not cry but he was not to excited about Disney at this point and a bit worried about this "fun place" we had taken him LOL….. so we headed over to the kiddie rides those were better but even some of then are very scary to a little kid he has a great little way about him though so it was all good… His favorite rides were the Pooh bear ride and it’s a small world he also loved soarin … We headed back to our room about 7 pm and had birthday cake minus the candles because we didn’t have any matches lol.. I ordered groceries to be delivered to our room……. 2 cases of bottled water, milk cereal, sandwich stuff and snacks this saved us a ton of money. We only ate out once a day and we did have a few snacks in the parks …Andrew was able to go with us and he also had a great time, having 4 of us was nice because that way none of us had to ride a ride alone if we didn’t want to. We never made it to a magic morning the earliest we made it to a park was 9am LOL …I can not wait till we get to go back…….. it honestly was one of the most relaxing vacations.. I have ever had. of course my leg and hip hurt but that’s pretty much normal life for me these days …

Kidney Failure go away

Kidney Failure go away from my Dad he has been through enough already, alrighty!!!!!!! will know the new numbers tomorrow....We are praying for low creatnee numbers in case your wondering !!!

Yesterday I went if for a touch up hair color form my Niece she is doing her Baby boards testing for her beauty license, My Grandmother was going to get a wash and set I think and my Mom is getting a pedicure, manicure and make-up done for the testing today...My other nice graduated from Veterinary school a few months ago.. Mindi is in beauty school now..two of my nephews are in the Navy and one in the Marines another nephew is a massage therapist, one is in collage to be a physical therapist ...I am very very proud of all these kids excuse me young adults ... They have dreams and are making them real and that's just awesome...

Rylan is learning to write letters of the alphabet he wrote his name 2 weeks ago and is getting pretty good at Tic tac toe with a little help...
One problem is the kid will not stay by my side in the stores and I actually lost him in big lots yesterday grrrr ..I was trying on a sweater and he zipped around the corner I told him to stop and when I got to the corner which was like 3 steps he was gone must of ran when I said stop ..I grabbed my purse out of my cart and went off hollerin for him, found him a short distance away with my Mom..... I just said "he is in trouble" and went back to get my cart with all my stuff in it and made him hold onto the car the whole rest of the time we were in the store ..I swear this kid has NO fear of getting lost from me .. Maybe he is going to be my national geographic explorer type person ...