MRI is done

I went for my MRI of my cocaxx today. I hope they also got some of my lower spine. The girl said they got good pictures I really hope that translates into " we found out what in the hell is wrong with your back "  we shall see what my doc says in a few days...its so damn depressing to be in pain all the time or like today I had to take my pain patch off a day early cause you can't wear it for the mri we taped it back on but these patches are like scotch tape on fabric they completly loose the sticky after they have been used...ok so the MRI this time was much better than my others it was a newer machine I think and plus I am 65 lbs lighter so it felt a lot more roomy ..my back I noticed after laying there for 45 minutes seems like one side the side that hurts is bigger than the other side so I felt like I was laying sideways on a bit of a hill... they used a contrast dye for the last 15 minutes of scans ...please let these show something please please please....

maybe a answer for my butt/ back/leg pains

yes the old butt/back/leg feeling like I am sitting on a golfball pains could COULD be getting a answer on May 31st...I went to the proctologist doctor today like I told him "you look at butts all day " so maybe you can help me figue out why why why I am in so much pain all the time ...I explained my issue and he went to work with one of my most unpleasent tasks I don't like ..the rectal exam ...he felt something that don't feel right ..he didn't use the word mass or wnything but said it did not feel like cancer but it didn't feel right to him,  so he has scheduled me for a MRI of my coccyx and a colonoscopy so he can see what he can at this point only feel ..of course I couldn't think of any questions ...he said something else about something he could see that didn't look quite right but I can't remember what it was I know I know I should of asked more so I could google this stuff while I am waiting for my appointments ...he did bring up my barretts esophagus but I can't remember why..now I am wondering if my intestines are doing weird cell changes like my esophagus did ...
    in a way I am worried but in another way I am not ...I am at the point of feeling like I just want answers to why I have so much pain and why I can't sit on hard chairs because of the golfball lump feeling ...I want to know I am not just a sissy lala, lazy person :-( there are so many things I would love to do but phycicaly I am.just not able I hate living this way ..its no fun and I know it weighs heavy on Randy and my kids ..I am not the wife and mommy I want to be and that makes me sad ....sad for them and sad for me :-( I hate it I really do.....
so keep praying I get a answer obviously your prayers work better than.my own because this doc suggested these tests on his own.... didn't look at me like I am a nut case....didn't  tell me to lose weight and do more exercize ...I have already tried all those things they don't work for me..
  on a good note I am down about 70 lbs the weight is just falling off of me these days ...

i think i have figured this out

I am 100% sure that when I fell down the stairs at our last home about 17 years ago I broke my coaxxy bone tail bone, then when in popped while digging weeds in 2003 and went to the chyropractor something went wrong ...I have had issue with sitting everydince then..I am not sure what kind of doctor to see I do have a appointment with my pcp tomarrow and a proctologist on the 21st and a spine center on the 31st I may be cacelling the spine specialist not sure going to talk with my pcp first...I really really think this is my answer...maybe since I have lost 70 lbs that bone is pokeing out further when I sit and that's why there is so much more pain ...

I have gone backwards ..

I have not been feeling so good lately started with a sore throat about 2 weeks ago that turned into severe stomach cramps ladt Saturday ..to severe back and leg pain on Wednesday...I have been dizzy and nauseated to top it of and complete exhaustion..I am.seeing my doc on Tuesday to get a refferal to a neurosurgen to get another opinion on my back because I could not hardly walk Wednesday ...I am very frustraited with my health...I just want to be well and and have a life where I can make plans to do things and actually be able to do them ...if your a prayer please pray for my health.....my poor husband and kids need a mom / wife that feels good and I need that to 10 years of this is just wearing me down and I just don't know what to do when I flair up in pain and sickness like this ...I also have a appointment with a proctoligist to see if he can tell me why when I sit I feel like I have a golfball stuck on the end of my tail bone that is also very painful...so that my blog pity party for the night...who know since my own prayers for myself don't work maybe yours will ...thank you

Puffy Face and headache

I think I am getting this allergy thing figured out ..I am not supposed to be eating glutin or dairy so what did I eat yesterday frozen pizza hmmm its odd because I can eat a cheese buger and feel fine the next day so I am not exactly sure what gave me these symptoms this morning ..gonna start paying more attention to what I am eating ..I did have my allergy test so I know what I am not supposed to eat but I do cheat and sometimes I get away with it ...last week on Easter I ate foods that I wasn't supposed to and ended up puffy and headachy then too...this changing how you eat is very hard to do and not something that I have been able to do in a quick fashion.

Invalid...

yesterday I moved one little cypress tree that involved digging it up and then digging a new hole...I also covered my future stawberry beds with black plastic then carried logs over to hold the plastic down..Today I feel as if I have been hit by a truck ugh..still managed to clean and dust a bookshelve in the bedroom and made turkey soup for dinner...it was a hard day....hope I feel lots better tomarrow! !

dry heave vomit episode again..

** EDIT Feb 2016 We found Black mold in our home Stachey and Aspugillus and some others I believe this is the cause of  illness in my family so am updating my labels to include Toxic Black mold *****woke up at 5am felt fine went back to sleep till 8:30am then and had sharp pains behind my belly button took a zofran and within 5 minutes I had the tingly spit building in the back of my throat..ended up in the bathroom dryheaving with the most awful sound ( something like a woman giving birth)  lasted long enough for Rylan who was in the kitchen to run and tell Andrew to call 911 by this time it had eased up so I told them to hold off on calling 911 and I laid on the couch exhausted for about a half  hour... rylan was so sweet brought me a puke bag..I also  really needed a diaper cause no vomit ever actually comes out but urine does.  there is so much pressure you just can't imagine...I do use the puke bags for spit  It builds up in my mouth when this happens...what brings this on I have no idea.... its always completely out of the blue and sudden,when it happens.
     After that it was a nice day out so I went and weeded a flower bed and dug some of my bulbs that had already bloomed they are very pretty little flowers and I want them closer to the house where I can see them when they bloom, right now they were out in one of my what I call nursery beds....if any of the ones in the pots bloom.again I will post a pic or if not I will.see if I can find pics that I took of them last year or the year before...

a bunch of dang sicklies...

we have all been sick for going on a month now ...all of us except tough guy Randy have been on antibiotics...I can not even begin to say how much I am ready for summer and warm weather and hoping our immuntities are getting nice and strong for Rylan to start 1st grade this fall..because if we don't he is going to miss a lot of school days...right now he only goes 2 and sometimes 3 days a week and has missed a ungodly number of days :-( ..I called and made a appintment for his doctor tomarrow but then canceled it he dosent really act sick, just still runny nose and junky cough so will wait a few more days and see whats going on..he finished up his antibioti s yesterday and is better than he was when he started but still not well well....Andrew is having a yucky plugged nose and I had the sinus pressue and headache with no stuffy nose but bad sore throat and terrible cough...
  mss kitty is our new stray and has finally gotten to the point that we (Rylan and I) can pet her..she is so sweet it makes me sad that she was just dumped off out here in timbuck to to fend for herself ...I will buy a bag of catfood and keep my fingrs crossed that she has been fixed,  in she hasn't then I will take her to be fixed after she has kittens...I told her no pooping in my flowers or gardens I hope she listens... I dislike poop so much lol....

when i stepped on the scale

I seen this :-) Its a very good thing I was up to 215 lbs when I first started haveing my esophagus dialated and yes I know my socks don't match they are both strips and the same type so that works for me ..

Dairy and eggs

My allergytest came back that I am allergic to milk and eggs...the gluten allergy part came back not so bad my naturalpath said there are lots of diffrent glutens so this bloodtest maynot of tested so much for those ..the saliva test I had showed I am allegic to it so I am going to do my best to stay clear of it ..

Me being a GFF..

yes I have been a Gluten Free Failure...ughh...

Happy New Year....2012

I hope this year holds good things in store...my goal this year will be to finally figure out what is wrong with my back...Last year I was able to get my shoulder and my stomach fixed..the year before that my sleep apnea..so now this year will be my back, oh and I will find out what food allergies I have on January 3rd...lets see last year was the first full year with out my brother Billy and half year without my Grandmother,family functions are just not the same :-( ...I have no resolutions to speak of for this next year I am just going to enjoy and savor the fact that I am here I am feeling better and enjoy what I have the here and now each and everyday...I will.also be getting my final tooth fixed yay as ypu know I have been having terrible teeth experiances with awful dentists ughh ...my most loved dentist that listened to me and fixed my mouth has taken a leave of absence that was so depressing for me to hear, hopefully the other dentist I have scheduled to fix my tooth will be just as good then I will be done hopfully for years and years with my teeth issues ....my goal for my blog will be a post or picture a day,everyday for the whole year...I should be able to do it since I am able to post stories and pictures from my phone ...who knows if I can be so disaplinned we shall see...

Things are good

Been a while since I posted ...Things are good I am feeling better Andrew is feeling better ...I have been busy trying to get things ie..my house in order after being sick almost bedbound for the past 3 years in order.......You have no idea how much stuff I still need to get accomplished, to have my home the way I like to have my home ... Along with going out and doing things with the kids and Randy ..This is the first Christmas I have felt good and able to even be in the spirit..Christmas cards have been bought, but not even one has been filled out or mailed off.. So that is lacking, but like I say 'I have been getting so much more accomplished,'its not been something I have been able to get done.... I feel so bad about that ..So many people that I love and want to write letters too :-( I feel really bad about that..... maybe I will be able to get some done on monday **I hope** ... I am down to 170 lbs as of this morning .. Randy says ""I am getting so skinny"" I am noticing that along with losing weight I am gaining wrinkles !!!! I asked Randy this morning "do you want skinny and wrinkle free? or chubby and no wrinkles?" he said "he loves me either way" I said "that was a perfect answer" hehehehe.... ok so I feel better now that I have at least maked a post... I am keeping it short for now,The pics above are from the fun day we had today.. I told the kids to get up get showered and dressed because I had a surprise for them. We went to a activity we have in our town called 'Christmas on Mars' we had never been there before and it was AWESOME the kids loved it, I loved it and Randy loved it ..Andrews Dad John just happened to be driving down the road and seen us crossing the street, so he pulled over and joined us for the day... what a extra nice surprise for Andrew :-)

Murphys Law..

Gosh I have felt pretty good yesterday and today except for this annoying as hell cough left over from being sick..I took some prednisone yesterday and today ,Thats what Rylans doc did for him so I am thinking/hoping that fixes me up too and I hope not to get sick again for a long long time being sick on top of living sick everyday is not fun ...I guess its just as well that I am stuck home its not like I have tons of money to waste but it would be nice to go to the grocery store and get some coupon deals ..

Adrenal Saliva Test Results and More

Received my results from my saliva testing at the natural-path doc ...My cortisol levels as you can see begin in the morning not even in the normal shaded part of the graph, No wonder I feel so lazy, tired and uninterested in anything..... other than things I have to do in order to get by everyday and I totally suck at those things .... I am completely and udderly exhausted all day/ all night....... along with the awful insomnia I suffer its a wonder to me I am even still kicking I honestly feel that bad !!!

From my blood test my vitamin D is critically low 24 for a person with autoimmune issues it should be at the very least 60 ..I am also very low on sodium, so I am to use extra salt ~ good salt ~ not plain old table salt....... we have been using the Mediterranean salt from Costco.. One of my friends the one who kept on encouraging me to go see the natural-path doc told me of a favorite salt she likes of course I can't remember what she called it LOL Who would of imagined there are different salts like that, not me that's for sure ..

My progesterone in the low end of normal at 24 ...22 is the bottom of the chart

My ESR has come down from 22 to 16 but my doc said ideal for me would be under 3 this is the test that tells how much you hurt~ I am not really sure how it does that ...

I have high normal white blood count as I usually do....... she is sure it because my body is fighting something, maybe the gluten that I also learned I am allergic to.... I misplaced my paper that has my gluten numbers on it, I will add the numbers when I find the paper and get a chance to ..My doc said I should not even let gluten/wheat touch anything I will be eating~ it is poison to me ..Her theory is that when foods are genetically modified some of our bodies know it and fight off the modifications as if its a invader in our bodies..

I still don't have the results of all my thyroid tests back yet and I see her again in 2 weeks to see if the herbs and vitamins are helping me feel better.... The one she may change if I am not feeling any better is the progenalon and change me to hydrocortazone ...I asked her if this could be the reason I feel so good and normal on prednisone and she said yes definitely, because that is a steroid and cortisol is a steroid our bodies make my body has just stopped making enough of it , due to stress or what ever my adrenals did all they could do then they just pretty much gave up its called adrenal fatigue... here is a link to a page I found yesterday that explains what it feels like pretty cl Adrenal Fatigue

Oh and I am on COD LIVER OIL ...yuck yuck yuck I hate fish and to have to ingest the liver of a fish completely grosses me out but if it makes me feel better I do it !!! I am also on high doses of vitamin D and some other herb type things nothing as gross as the cod liver oil though !!!!!!!

So I get a letter from my primary doctor about my barium swallow from the 21 and it says everything is fine just mild esophageal muscle contractions and there is nothing to do about it....
WHAT...
When I was doing the test the barium was stuck in my esophagus in the laydown position and the Radiologist Doctor *not the tech* said "wow look at that, its not going down that's not normal" and had me even look at it... I didn't even stay in the xray type machine until it did go down so how can they say how mild it was..I left went to rite aid and it was still sitting in my throat 5 minutes later.. I could feel it ..I can't hardly swallow my medicine and water is not going down easily either ...I went to the gastro and seen the NP yesterday she didn't have my results but scheduled me for a endoscopy for the 16th she did remember me and could not believe how much problems I had with my esophagus since she blew me off last time ..now I wonder when she sees this test results if she or my gastro doc are going to think I am exaggerating or worse lying..well I am not doing either I want to make that clear right here right now ..I am getting to the end of my rope here ..I am so hopeful my thyroid test will come back showing thyroid problems I am so tired of being sick and having doctors look at me like I am a idiot..I know what and how I feel and its not normal !!!!

Where do we go..

To the doctors of course ...this week so far I have been the the phyciatrist and had a Mamo,Randy went to the naturalpath doc monday and Andrew went this morning we all go back in a week or two for our bloodwork results..By the way yes I do want something that can be fixed with a pill I am sick of feeling so crappy...started on a new sleeping pill last night Lunesta didn't work only slept between 4-5 hours doc said it may take a couple of days to be effective ughh I want some sleep :-) ok what else oh I go see the NP at the gastros office tomarrow ..I tell ya always something fun happing here !!!

wow 2 posts one day ...

I forgot to add I did have to take like 8 ibruprofins yesterday...... that sucks, this is added along with my long acting pain sticker patch..the patch is really is not that long acting or short acting, I am pretty sure its just keeping me from going to withdrawls after getting off the Loratabs.. oh well ..I get to see they the phyciatrist doc says tomarrow ..

Day 6

Day 6 of new eating plan I am feeling pretty good. My toe on my right foot was still numb most of the day yesterday.. but I was able to do pumpkin place, train place and sit in the car while Randy and Andrew did haunted place..I am starting to really believe I have a food allergy..don't feel 100% yet.. but I do feel better..

So far, so good..

My new way of eating has been going pretty good ..I am feeling a bit more clear headed..That is a really good thing since I have to go see a psychiatrist next week ughhh ...
I went and had a barium swallow yesterday and my esophagus is closing up again.. so I will also be going to the gastro doc I will be seeing the NP because my gastro doc is booked out till December OMG !!!!! She is the one that was sooo convinced that I was just eating too much and need to exercise to lose weight.I know I posted about her on here somewhere. Anyways, I wonder if she will remember me ? probably not.. I also wonder what she is going to have to say about my esophagus now !!!
I need to get better this is getting very old... poor Rylan I feel so bad so many things I want to do with him and for him but I don't have the energy to even leave the house most of the time... We are going to be going out for a fun time tomorrow though..